Hi everyone,
I find myself writing this because I am having to take some personal time. Recently, my health has declined. I’ve developed a heart rate of 114 beats per minute at rest. So I’m now undergoing various medical check ups, because I live with several chronic health conditions.
One of which is ACOS. Asthma COPD overlap syndrome the COPD is chronic obstructive pulmonary disease. Which can lead to heart problems and sleep apnea as complications of the condition. As well as this I’m short sighted. I had a fall due to FND. My glasses got broken, so it’s hard to do anything.
If you don’t know FND stands for Functional Neurological Disorder it’s basically from what I understand of it. When messages don’t get to the right place. Functional neurological disorder occurs when the brain has trouble receiving information. It struggles to send information to the rest of the body.
So while I suffer with respiratory illnesses I also suffer three simultaneous conditions of neurological and mental health. But that won’t stop me writing or improving things for myself and family.
When the covid immunisation was rolled out I decided to ignore my conspiracy theories side and have it. Advised by the medical professionals. Trust me, when it struck, I found a course by professionals in the field. I learned what I can about it. I turned off the scaremongering press and focused on facts as much as I can.
But after the covid immunisation I became ill. The paramedics suspected stroke so I went into hospital. A week later discharged with a slip of paper which had a website on.
The stroke doctor I saw said fnd and this is his words. “it’s often helpful to think of your brain as a computer. There’s no damage to the hardware, or structure, of the brain. It’s the software, or program running on the computer, that isn’t working properly.”
A neurologist provided a diagnosis. My brain was 7-14 inches out of my skull at that time. A condition known as Cerebellar Tonsilar Ectopea (chiari malformation I understand is another name for it). On top of that Diabetic to say I was in shock over the first diagnosis would be an understatement. But the second one of FND truly scrambled my brain. Then diabetes on top.
I had never heard of two conditions namely fnd or Cerebellar tonsillar Ectopea. In fact, I would never have dreamed that someone’s brain is out of the skull. But there i was with the diagnosis. I’ve always suffered the worst headaches imaginable ones that lay me flat for days. My hands and legs were weak. My eyes stayed closed when I was awake. I had speech problems, but I just got on with life. As I do now there’s nothing that can be done as the medical professionals don’t really understand either condition.
Simply the funding is not there, and neither is the awareness.
infact when I came out of hospital I received a covid test and letter. We have just received notification that you have a certain condition. If you develop covid, you can get an experimental IV infusion. My answer to that was a swift no.
in fact when I asked the stroke doctor “alright so we know what it is what do we do!”
“avoid stress” was his reply
Ok I’ll leave this here I want to apologise for the rant. But if you made it this far thank you very much for reading. Infact if you have read my other posts Thank you and thank you for the likes and follows.
further reading
StormborneLore 