I suffer from a condition which isn’t really well understood by the medical profession, called cerebellar tonsillar ectopia.
This happens when the tonsils of the brain descend down through the foramen magnum. The natural opening at the base of the skull where the spinal cord passes.
In my case, the descent is between 7–14mm. Which leaves me struggling daily with chronic headaches, migraines, mobility and balance problems, dizziness, and more.
My Symptoms
Headaches: Often sharp at the back of my head, spreading down to the neck and shoulders. They worsen with coughing, sneezing, or straining.
Neck pain: Aching and stiffness that never quite goes away.
Balance issues: I live with daily clumsiness, falls, and unsteady gait .My zimmer frames and four-wheel walker are part of life.
Dizziness & vertigo: At least several times a week I feel the world spin.
Sensory changes: Pins and needles, tingling, and numbness in my hands, feet, and face.
Swallowing & speech difficulties: Food can feel stuck, and sometimes my words fail me mid-conversation slurred or simply stuck.
Vision changes: Blurred or double vision.
Sleep issues: Insomnia, breathlessness, possible sleep apnea made worse by COPD and asthma.
Eye & heart symptoms: Involuntary eye movements, narrowing blood vessels (noted by my optician), and occasional palpitations.
What We Know
The severity of symptoms varies some people who have a tonsillar descent and never know it.
It is rare: one study found only 0.77% of 22,000 people had it, and only 14% of those had symptoms. That’s 169 people out of the 22,000 who was discovered to have Cerebellar Tonsillar Ectopia.
It is usually diagnosed with MRI scans, often by accident. For me, it was discovered during the thick of COVID, after severe illness after the vaccine.
Treatment
For now, I am managed with pain relief and regular monitoring.
Many patients improve after Chiari decompression surgery. This is where bone at the back of the skull is removed. In turn this to make more space but it is not a cure.
Almost 80% of patients report improvements in headaches and neck pain after surgery.
Living With It.
Living with this condition means I rarely go out. Especially as I live in a first-floor flat and mobility is a challenge. Bath boards, kitchen chairs, and walking aids help me hold onto independence.
Yet, in many ways, it feels no different from what our ancestors lived through. When ailments had no names when dizziness, weakness, or visions were seen as the touch of gods or spirits.
What we now call neurology once was understood as omens, curses, or gifts.
My constant battle is not only medical, but spiritual too. a reminder that we live on the boundary between body and spirit, health and struggle.
Through the Eyes of the Ancients.
If someone like me had lived in Celtic or Roman Britain, this condition would have had no medical name. Instead, my symptoms would have been explained as signs of otherworldly touch.
Headaches and dizziness have been seen as visions, proof that the gods or ancestors were pressing close. Druids have taken it as a calling a sign that one foot already walked in the Other world.
Slurred speech or fainting spells could have been taken as possession, or the whispers of spirits breaking through the veil.
Unsteady gait and weakness have marked me as cursed, chosen, or touched by the fae. In some cultures, those who stumbled between steps were believed to be walking between realms.
Even the constant pain is woven into myth not as weakness. But as sacrifice, the price for carrying sacred insight.
The Romans, more pragmatic, have marked me as “unfit” or even “mad.” But to the Celts, with their deep reverence for seers and dreamers, I would not have been dismissed. Instead, I would have been guided into a priestly or prophetic role the one who hears beyond the ordinary.
So while the modern world gives my suffering a clinical name cerebellar tonsillar ectopia. The ancient world has given me something different: purpose.
Authors Note.
I feel it is important to share this not only as part of my story. But to raise awareness of a condition that is still little known and poorly understood.
Matters of the mind whether it is mental illness, cerebellar tonsillar ectopia, or functional neurological disorders.
stay vast, mysterious, and too often overlooked. Research and funding still lag far behind the need.
By speaking openly, I hope to bring light to these hidden struggles. To remind others who walk this path that they are not alone.
When the Roman legions marched into Britain in AD 43 under Emperor Claudius, they did not find an empty land. They found a patchwork of proud tribes, each with its own rulers, gods, and customs.
To the west of Watling Street lay the Cornovii, rooted in Shropshire and Staffordshire. To the south, around the salt-rich lands of Droitwich and Gloucestershire, stood the Dobunni. Both tribes would feel the weight of Rome’s advance.
Salt and Survival
Salt was life. It preserved food, healed wounds, and was as valuable as coin. The Romans renamed Droitwich Salinae and placed it under heavy control, taxing the salt trade and guarding it with military force.
For the Celts, who had long drawn wealth from the brine springs, this was both a theft and an insult. To strike the salt routes was to strike at Rome itself.
Resistance and Betrayal.
Not all Britons resisted. Some tribal leaders saw the might of Rome and chose to make an alliance. They took Roman names, built villas, and dressed in the style of their conquerors.
Others fought tooth and nail, their warriors painted, their gods called upon in the forests and on the hills. This clash between loyalty to tradition and the lure of Roman power split kin and tribe alike betrayal often hurt more than Roman swords.
Gods of Two Worlds.
The Romans rarely erased local gods. Instead, they blended them into their own pantheon.
Taranis, Celtic god of thunder, was aligned with Jupiter, wielder of lightning.
Sulis, worshipped at Bath, was merged with Minerva, goddess of wisdom.
Even the war goddess Andraste found echoes in Roman Mars and Bellona.
For many, this was a mask. Outwardly Roman, inwardly Celtic still. Temples rose with Latin names carved into stone, yet behind closed doors, the old rituals carried on offerings at sacred groves, whispered invocations at standing stones.
Daily Life Under Rome.
Markets bustled with pottery, wine, and oil imported from Gaul and Spain. Roman roads cut straight through the land, binding together forts, towns, and villas. Yet step off the road and you might still find Celtic roundhouses, farmers living as their ancestors had, and druids carrying wisdom that defied Rome’s order.
Legacy.
Celtic–Roman Britain was not either fully conquered or fully free. It was a place of merging, conflict, and uneasy coexistence. Rome imposed its order, but the spirit of the land the forests, the rivers, the stones still whispered the old names.
For some, like the warriors of legend, this was a time of rebellion. For others, a time of survival. And for figures like Taranis Stormborne, also known as Storm caught between gods and men, Rome and Celt, it was the crucible that forged myths still told today.
They marched him up the salt-hill at Dodderhill, where the Roman timber bites into the skyline like bad teeth. Below, Salinae steams. The brine pits cough a white breath across the roofs, and every back in the town goes still; men with salt-burned hands, women with brined wrists, children with their mouths parted. All of them looking up. All of them waiting to see a lesson.
Storm’s wrists are raw from the iron. His shirt is torn where they hauled it over his head, the air is cold on old scars and new. There is a cut across his ribs from the morning’s struggle and the dried salt in it stings like sand.
A centurion with a wine-scarred mouth calls the charge in a language that thinks it is the only one that matters.
“Rebel. Murderer. Enemy of Rome.” The words land like stones. Men with square shields drag the condemned in a line. Three farmers. A boy who threw a stone. Storm.
“Use the cross for the big one,” the centurion says. “Make them see.”
They set the upright in the earth, ramming it with a post-driver until the ground answers. The carpenter’s nails gleam in a little wooden tray, thick as a man’s thumb. The hammer is clean. The executioner’s eyes flick to Storm and away again as if he’s looked at the sun too long.
Storm keeps his chin up because he will not bend. He smells oak smoke from the town, the sour of men in mail, the resin of fresh-split palings. He tastes brine on his teeth. A gull wheels and screams once, the cry torn thin by the wind.
A voice from the crowd below: not words, just a keening. Another voice, hoarse, calls his name the way a prayer is called: “Shield!”
He does not look down. He looks at the sky. Cloud, thin and grey and harmless. For now.
“Hold him,” the centurion says.
Four soldiers pin his arms. The fifth takes Storm’s right hand and forces it open against the cross-beam. The leather strap bites his palm. The executioner lifts the first nail. It is cold when it kisses the crease of Storm’s wrist.
Storm hears the old world in the edges of the day. The ring he once wore feels like a phantom weight on his finger. He sees Nessa’s hair in the corner of his sight when the wind shifts. He hears Boldolph and Morrigan somewhere he can’t walk to anymore. Rayne’s voice is the whisper in the hinge of the jaw: brother, hold still and we will live. Brother, lie down.
The hammer rises.
Thunder is far off. Not here, not yet. A single pulse on the horizon like a heart behind a ribcage. The executioner breathes. The hammer falls.
It meets iron and the iron skids, glancing off the nail head. The blow dents the wood and slams into Storm’s bones. He grunts despite himself. Blood beads. The executioner squints, checks the nail, lifts again.
The second stroke strikes home. Iron bites meat. The sky pulls tight.
A woman cries out below. “Enough! He fought for us!”
“Silence,” the centurion barks, not looking down.
Storm tastes copper. His vision narrows, then widens until he can see each hair on the executioner’s wrist, each pore, each fleck of sawdust stuck to the hammer’s face. It is the old sight, the red edge. He could go there—into the roar where nothing hurts until after—but he does not. He holds on. He wants to watch.
“Left,” the centurion says.
They take his other hand. Fingers spread. The nail’s cold mouth finds the vein. The hammer rises
and the wind turns.
Not a gust. A pivot. The kind of turning that changes seasons. Smoke from the brine pans below folds back on itself. Sparrows flatten to the earth. The hairs along Storm’s arms lift.
The first crack of thunder lands atop the fort like an axe into a block. Every man jolts. A standard topples with a clatter of bronze. The executioner flinches, the nail slips, and instead of flesh he drives it through the softened knot of the beam.
The shock carries up his arm. He swears. The soldier holding Storm’s elbow looks at the sky. The sky looks back.
Cloud blooms fast from the western line, rolling in on a bruise-coloured belly. A wolf-long shape seems to run along its edge and is gone. Another crack. Closer.
“Finish it,” the centurion snaps. But there’s a catch in it now, and he makes a sign with his two fingers as if to pinch off something unseen.
The hammer lifts for the third time.
Lightning hits the palisade post a spear’s throw away. Wood screams. Splinters go like hail. Men duck behind shields by training, but training breaks when the sky speaks in a voice older than their gods. A mule rears and snaps its lead. The nail tray overturns; iron skitters like teeth on stone.
Storm moves then.
He lets the red edge take him for a heartbeat just enough. He wrenches, twisting his pinned right wrist so the cut tears long and clean instead of deep. The leather strap splits where sweat has rotted it.
He brings his head forward under the beam, drives his shoulder into the soldier’s throat, hears the wet cough, feels the grip loosen. He kicks back, heel to knee, and the man behind him falls with a scream.
There is always a moment in a fight when the world decides. This is it.
He drives the crown of his head into the executioner’s face; the man drops the hammer, hands going to his nose. Storm grabs the hammer with his left hand, blood slicking the haft, and swings the weight into the chain on his left wrist. Once. Twice. The chain holds. The third blow finds the link that was barely peened shut, and it parts with a sweet, bright sound.
“Hold him!” the centurion bellows, but half his men are looking at the burning post and the other half are looking at the sky.
Shapes break from the heather below the berm three, five, a dozen men with black-painted shields and hunters’ faces. Brianna’s braid is bound with leather; Cadan’s scar shows white through ash. They come without horns or shouts, all knife and certainty.
Brianna hits the left flank like a thrown stone, her knife opening a belly before the man knows his shield is gone. Cadan slides under a spear and cuts the hamstring clean, then is up again and laughing because sometimes that is the only way to keep breath inside you.
“Storm!” Brianna barks.
He throws the hammer. She catches it by the neck and brings it down on a helmet rim, bending iron into eyebrow and eye. She tosses it back and he takes the chain a second time and frees his right.
The centurion finds his voice at last and orders the archers, but the bowstrings are wet now, the fletchings torn sideways by the sideways rain that has arrived without crossing the ground between. Arrows go high and crooked. One finds a farmer’s boy in the line of the condemned. The boy sits down as if to rest and does not get up again.
Storm would carry that if he let himself. Later, he thinks, later, and steps toward the centurion.
“Stand,” the centurion says, not to him but to what moves in his bones.
“I do,” Storm says.
They meet as men meet: iron-toothed and close. The centurion is trained. Storm is made. The first cut is Storm’s forearm across the centurion’s sword-hand, breaking the rhythm, and the second is Storm’s head against the man’s nose—again, because men are made of the same mistakes and the third is Storm’s thumb to the centurion’s eye. The man goes down with a sound nothing like command.
“Back!” a junior officer yelps. “Back to the fort!”
They drag their wounded. They leave their dead. They do not look at the cross. The storm does what storms do it eats the edges of everything.
From the town below, the people cannot see the cut and the grapple, only the outline of men against rain and the lightning that makes ghosts of them. Then those ghosts are gone into the gorse and the broom, and the hill is left with a burning post and an empty beam and a rumour that begins to run faster than hooves.
They bind Storm’s wrist tight with a strip of his own shirt and the last clean linen any of them have. The bleeding slows. His hands shake after it stops. He sits with his back against a birch, watching steam lift off his skin.
“Could have died,” Cadan says, not accusing, not gentle.
“Didn’t,” Storm answers.
Brianna crouches and studies the wound. “You’ll have two scars for one story,” she says. “The tale-singers will thank you.”
Storm looks at the knot of linen. He thinks of a nail driven through the heel of a stranger in a land he will never see, of crosses on a hill where a different empire stakes its truth. He thinks of Nessa’s mouth and Rayne’s eyes and of wolves that do not answer. He feels the tremor in himself and wonders if it will ever stop.
“Was it you?” Cadan asks. “The sky?”
Storm chews that like gristle and spits it out. “No,” he says. “It was the sky.”
Brianna huffs once, almost a laugh. “Then the sky is with us.”
They move as the light fails, cutting north and a little west, keeping to hedges and the backs of fields, avoiding every lane the Romans know.
The storm rolls away toward the Severn; behind it, the wood drips and the undergrowth smells green and clean as if nothing dies.
By the time they reach the low, wet ground where the oaks thicken half a day’s walk from the salt town, close enough to smell wood-smoke when the wind is right night has set.
They choose a place where yew anchors a little rise and an old fallen oak makes a table the size of a man. Cadan lights a small fire that no one will see unless they are meant to. Brianna lays out bread and dried meat and a handful of early wild garlic leaves, because ritual has to start with something you can eat.
Storm stands, because oaths are made on feet.
“We were a ring,” he says. “We were a house. We were a promise to people who do not want us anymore. Today I was meant to die to teach them to fear, and I did not. I don’t know if that is luck or the gods or a debt that will come due later.”
He looks at each of them. There are eleven counting him. Some are men who fought with him when the wolves still ran the ridge. Some are women who learned a knife because no one else would come. One is a boy who was a boy yesterday and is not anymore.
“I’m done waiting for any man’s mercy,” Storm says. “If you stay with me now, you stay knowing there will be no pardon. No ring to call us home. We will be hunted by chiefs and by Rome and by the stories men tell when they are afraid. We will strike and vanish.
We will take food from those who hoard it and give it to those who starve. We will cut chains where we find them. We will keep the lanes dangerous for those who would make them safe for empire. We will be the shadow that says not yet.”
He sets his palm on the fallen oak. Blood from the bandage seeps fresh and red and bright against the old grey wood.
“I name us,” he says, and the words come easy because they are true before he speaks them. “The Black Shields. Not for hiding” he taps the painted face of Brianna’s board, dull black with ash and pitch “but for what we carry in front of us so the ones behind can live.”
Brianna puts her hand over his. “Black Shields,” she says.
Cadan’s hand stacks next. “Black Shields.”
One by one, the others follow, rough palms and finer, scarred knuckles and bitten nails, hands that have stolen and fed and fought and held.
When they step back, the tree holds their blood in a dark print that already looks like a sigil.
A wind runs through the oak leaves though nothing else stirs. Somewhere far off a fox barks and another answers. In the dip of silence after, Storm thinks he hears just for a breath the long, low note of a wolf.
He looks up into the black roof of the wood and does not ask for a sign. He has had enough signs for one day.
“Sleep,” he tells them. “We move before light. The salt road will wake angry.”
Brianna nods, already spreading a cloak for the boy who is not a boy. Cadan checks the edges of the camp, his knife out, his shoulders easy for the first time since the hill.
Storm sits again with his back to the birch. His wrist throbs in time with his heart. When he closes his eyes, the hammer falls, and falls, and falls, and does not find him.
Below, the town spreads the story because towns are made to spread stories. By morning it will have a name it did not have yesterday the Hill of Ashes. By night there will be new chalk marks cut into the backs of gateposts that mean leave bread, and others that mean soldiers, and others that mean the Black Shields have passed.
He lets sleep take him only when the fire dies to a patient red and the rain begins again, soft and fine, washing the last blood from the bark.
From this moment Taranis Stormborne became known as Storm among his men.
The night was raw and sharp with frost, the air thick with the scent of pine and woodsmoke drifting from distant hearths. Taranis rode ahead, the black shield strapped to his back catching what little moonlight broke through the bare branches.
Behind him, the Black Shields moved like a shadow given form. Seven riders their shields painted black and marked with the storm-sigil in dull grey ash. Among them, Brianna kept pace, her raven-dark hair bound in a warrior’s braid, eyes fixed on the road ahead.
Their target lay where the old trader’s road bent toward the river. a Roman supply convoy, fat with grain, salted pork, and amphorae of oil. The guards wore the same polished arrogance as all Rome’s men helmets gleaming, spears upright, their march a perfect, disciplined rhythm.
Taranis raised his fist. The forest seemed to hold its breath. Then his hand dropped, and the night erupted.
Arrows hissed from the treeline, felling the lead guard before the others could shout. Brianna’s blade flashed as she rode through the side of the column, cutting down a soldier who tried to raise his horn. Taranis slammed into the rearmost wagon, sending it lurching into the ditch.
The fight was short, brutal. When it ended, the snow was churned with blood and the mules stood trembling, steam curling from their nostrils.
“Take the lot,” Taranis said. “Every last sack.”
The Shields loaded what they could onto their own wagons, but instead of retreating into the forest as usual, Taranis turned his horse toward the lowland villages along the marsh. They moved in silence, the wagons creaking under the weight of Rome’s stolen bounty.
The first door they knocked on belonged to a bent-backed widow with two hungry children. Brianna handed her a sack of grain without a word.
At the next farmstead, a half-crippled shepherd received a barrel of salted pork. By the time they reached the edge of Emberhelm’s border, half the load was gone.
The rest, Taranis delivered at dawn to Lore’s men at the southern watch, and to Drax’s quartermaster in the hills.
When Brianna caught up to him by the river, she frowned.
“You give more than you keep. That’s not how outlaws survive.”
Taranis shrugged, eyes on the water.
“Then I’m not an outlaw. I’m a storm. Storms take, but they leave the earth ready to grow again.”
She studied him for a long moment before nodding once.
“Then let’s see how long the earth lets you live.”
The forests north of Emberhelm were not empty. They whispered in the cold leaves rustling without wind, branches creaking as if bearing witness.
Every step of Taranis’s horse cracked frost from the dead undergrowth, and in the darkness, unseen eyes marked his passage.
The Black Shields had grown in only a handful of days. Seven now a band stitched together from thieves, deserters, exiled warriors, and one woman with hair like raven feathers whose blade was sharper than her tongue. She called herself Brianna , and unlike the others, she did not flinch when Taranis looked at her.
They camped in the hollows where no light could reach. They moved before sunrise, leaving only cold ashes behind, and they spoke little, except for the soft murmur of plans and the low hum of old battle songs.
Their first strike had been for food. The second, for vengeance. The third would be for a message, not just for them but the starving.
Bryn Halwyn a hill fort the Romans had claimed but not yet reforged in their own style. Its high earthwork walls crouched like a sleeping beast above the winding road. That road was crawling now with supply wagons, the torchlight of the guards bobbing like fireflies in the mist.
Taranis’s voice was a low growl “Shields black. Faces darker.”
The Shields moved as one, melting into the tree line. Arrows hissed from the dark, the first taking a Roman through the throat before his shout could leave his mouth. The second dropped a driver from his cart, spilling barrels into the mud.
Then came the torches. They arced through the air, their fire licking greedily at wagon covers, rope, and dry straw. Flames climbed fast, reflected in the wide eyes of panicked mules.
Taranis was already moving. A shadow at the edge of the firelight, blade flashing, he cut through the first guard and didn’t stop. The air stank of blood and burning oak. The Romans shouted in their clipped tongue, but their formations shattered in the chaos.
By dawn, the road was empty but for the smell of wet ash and a single storm-sigil burned deep into the dirt where the wagons had stood.
When they were gone, the crows came, hopping between the blackened wheels and picking at the dead.
That night, beside a hidden fire, the Shields feasted on stolen bread and salt pork. Kerris leaned across the flames.
“What now?” she asked.
Taranis stared into the heart of the fire until his eyes stung. “We keep going until there’s nothing left to take. Or until they come for me.”
Kerris smirked. “And if they do?”
He smiled without warmth. “Then they’ll find the storm waiting.” he replied with a grin
The morning after the storm was silent, but for the river.
Its grey water curled slow beneath the bridge, licking at the stones as if to wash them clean of the night before. It could not.
Boldolph lay there still, fur wet, eyes closed in the peace of warriors who never feared death. Morrigan was beside him, her flank pressed against his as though she had refused to fall alone.
Taranis did not kneel. He stood apart, a horn of bitter mead in one hand, the other wrapped around the haft of his spear. His brothers spoke words over the dead the kind of words that should have meant something but the high warlord’s gaze was elsewhere. Past the pyres, past the valley, toward the ridges where the enemy had come.
The smell of charred wood and dragon’s breath lingered. Somewhere above the clouds, the great wings of Pendragon and Tairneanach were gone to ash or exile. He could feel the absence as a wound.
When the flames took the wolves, he drank deep. When the ashes scattered on the wind, he did not look back.
That night, in the hall of Ignis, Lore spoke of rebuilding. Draven spoke of the Ring’s oaths. Drax spoke of vengeance. Taranis said nothing until the room had emptied.
Then, to the empty benches, he muttered, “The Ring is cracked. And cracks spread.”
Outside, the moon rode high. In its light, a man in a blackened cloak rode from Emberhelm with no banner and no blessing only a storm sigil scratched into his shield with the point of a knife.
The Black Shields had begun.
2025 Emma Hewitt. All rights reserved. This story and all characters within the StormborneLore world are the original creation of Emma Hewitt. No part of this publication may be reproduced, distributed, or transmitted in any form or by any means without the prior written permission of the author, except in the case of brief quotations used in reviews or scholarly works.
From the outer wall, Taranis could taste the storm before it broke sharp on the air, heavy in his bones. The valley below was black save for the faint glint of torchlight far beyond the river. The strangers from the ridge had come at last.
“They’re not raiders,” Drax said, joining him at the wall. “Too few for a siege. Too disciplined for a skirmish.”
“Too confident to live,” Taranis replied, though the set of his jaw told another story.
By the time the first horn blew, the outer gate was already under assault. Not a roar of chaos, but the steady, hammering rhythm of a trained force. Boldolph and Morrigan were first to meet them teeth bared, fur bristling, their snarls rolling over the walls like distant thunder.
Then the sky tore.
Pendragon and Tairneanach came from the dark like living fire. Wings swept low, scattering the first wave of attackers into the river. For a heartbeat, the night belonged to Emberhelm.
But then a cry from the inner courtyard.
Nessa, blade in hand, burst from the shadows. “Caelum’s chamber is empty!”
Taranis didn’t think he moved. Past the gate, through the melee, cutting down the enemy commander’s guard one by one until steel rang on steel. The man was quick, his armour unfamiliar banded metal, curved like river reeds, not the crude plates of the hill tribes. A shadow of Rome in the making.
Behind them, the wolves fought on. Boldolph took a spear to the ribs and kept moving. Morrigan’s howl was the last thing many would hear before the river claimed them.
Inside the sacred circle, Lore’s voice rose over the clash an old chant to bind the enemy’s will. Draven tried to hold the stones, his hands trembling against the carved runes. Rayne was nowhere to be seen.
The duel was short and brutal. Taranis drove his blade through the man’s chest, wrenching it free as lightning split the sky. But in that moment, the circle of stones shook. One the thirteenth stone cracked down its face with a sound like the earth breaking.
Pendragon roared once more, then wheeled away into the storm. Tairneanach followed. Neither would be seen again.
When the gate finally closed, the field beyond was strewn with the dead ours and theirs. Boldolph lay on the bridge, Morrigan beside him, the river taking their last breath.
And in the quiet after, Caelum was found untouched, but with a strip of strange iron tied to his crib. A mark, a warning, or a promise.
Taranis stood in the ruins of Emberhelm, rain running from his cloak, watching the storm move east.
“I will find who brought them to our gates,” he said.
From the shadows, Rayne’s voice answered, almost too soft to hear. “You won’t have to look far.”
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